Updated Event Details

We are excited to invite you to join The Miraculous Miss Maddie in an evening filled with delicious food, great music, exciting raffle prizes, and great company. This evening will mark the commencement of Maddie's Mission, a public non-profit 501c3 organization committed to bringing awareness to rare diseases including Angelman syndrome. We will also raise money for Kansas City organizations supporting children with different needs including Britain Development, Children's Mercy, & Playabilities.

Please bring your lawn chairs, appetites and dancing shoes. Maddie will be saving a dance for you!

You're Making a Difference 2024 Donations for Maddie's Mission

of our $250,000 goal!

A Mission to Cure Angelman Syndrome

We are excited to announce the launch of Maddie's Mission. We hope you will join us in raising awareness and funding to support treatment and a cure for Angelman syndrome and other rare diseases. We are better, together!

The Miraculous Miss Maddie Maddie's Mission

My name is Maddie, or the Miraculous Miss Maddie! At 15 months of age, I was diagnosed with Angelman syndrome (AS), a rare neuro-genetic disorder. Angelman syndrome is often misdiagnosed as autism, cerebral palsy, or Prader-Willi syndrome because of its similar presentation and symptomatology.

My parents were told of all the things I would never be able to do. Very little was said about my possibilities, but my family decided to focus on hope. Despite all the symptoms I may face, we were determined to create a happy and bright life - filled with hope and possibilities. My family and I are committed to turning the cant's into cans. I am miraculous! I walk. I communicate. I am determined to grow and learn everything.

Maddie’s Mission is here to create awareness and opportunities for others diagnosed with Angelman syndrome and other children with special needs. We should not be limited by a label or defined by what we might or might not be able to achieve.

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International Angelman Day

The ASF is one of 50 organizations, world-wide that will came together to raise awareness for Angelman syndrome and honor our loved ones with AS.

February is International Rare Disease month and this annual event is observed for Angelman syndrome. Join us to encourage fundraising, promote research and educational resources, and remember those people with Angelman Syndrome who are no longer with us.

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