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The Miraculous Miss Maddie Maddie's Mission
My name is Maddie, or the Miraculous Miss Maddie! At 15 months of age, I was diagnosed with Angelman syndrome (AS), a rare neuro-genetic disorder. Angelman syndrome is often misdiagnosed as autism, cerebral palsy, or Prader-Willi syndrome because of its similar presentation and symptomatology.
My parents were told of all the things I would never be able to do. Very little was said about my possibilities, but my family decided to focus on hope. Despite all the symptoms I may face, we were determined to create a happy and bright life - filled with hope and possibilities. My family and I are committed to turning the cant's into cans. I am miraculous! I walk. I communicate. I am determined to grow and learn everything.
Maddie’s Mission is here to create awareness and opportunities for others diagnosed with Angelman syndrome and other children with special needs. We should not be limited by a label or defined by what we might or might not be able to achieve.
Join Us in Support Maddie's Events
International Angelman Day
The ASF is one of 50 organizations, world-wide that will came together to raise awareness for Angelman syndrome and honor our loved ones with AS.
February is International Rare Disease month and this annual event is observed for Angelman syndrome. Join us to encourage fundraising, promote research and educational resources, and remember those people with Angelman Syndrome who are no longer with us.
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Recent News on Angelman Syndrome
FAST Science Summit Brings Message of Hope and Raises Funds
Researchers brought a message of hope for the Angelman syndrome community as they discussed advances in treatment and scientific knowledge at the recent 2021 FAST Global Science Summit and Gala in Austin.
Hosted by the Foundation for Angelman Syndrome Therapeutics (FAST), the annual event is an opportunity for members of the community to meet, learn about the latest scientific progress, and raise funds for more research.
Read more about this article from Angelman Syndrome News